Sunday, May 3, 2015

How to Become an Overcomer

     Over the past four weeks our pastor has been doing a sermon tackling some of the hard questions: Why do bad things happen to good people?  Why does God let people get sick and leave prayers unanswered?  What is God's will for my life?  Why have faith if God isn't always going to answer our prayers?  Although these are some very tough questions and I still have questions left unanswered, these things were made clear to me over the past few weeks.  God never promised us a life without pain.  Although we all face seasons in our life that are anything but how we imagined they would be, the real part of the story is how we handle the conflict.  Beautiful things arise out of pain, we arise out of the pain, and ultimately, God helps us to find a way to write good out of the pain.  And so, from the pain we can become Overcomers.

How to Become an Overcomer

  • In all tough situations, think, "What is the most loving thing I can do?"
  • In most cases, we know the right thing to do.  The question is, will we do it?
  • Remember, in the face of evil, we are called to bring about the maximum amount of good
  • Use your dominion to push back the darkness by bringing kindness and love and light
  • Take the hand you are dealt and run with it
  • Remember, if you spend all your time looking at the bad, you're gonna miss all the good and the beautiful
  • Remember, God doesn't ensure that only good things happen, but God brings good out of the hardship and the pain
  • Live for the now
  • We don't know how much time we have, but we do know that we can cherish what we do have
  • Give thanks for what you've been given everyday
  • Remember, the worst thing is never the last thing
  • Remember, God works through other people.  Pay attention.  You are the answers to other people's prayers.
I'm still waiting for my "grand slam out of the park" prayer to be answered.  But in the mean time, I reflect back on the many times that I have seen God walking with me over the past few years reminding me that he's still here with me.  And that is more than enough for now:)


Because the World can Get Dark & We Really Need You ; 5 Ways to Keep Being Brave

Wednesday, April 22, 2015

I am the ONE in Eight

     It's National Infertility Awareness Week this week.  I have to say that I am so impressed by the publicity it is getting this week.  I have seen so media outlets running stories about infertility stories, facts, and individuals and it makes me happy to see such an important cause that affects so many getting the coverage it deserves.  Believe it or not, infertility affects one in eight couples.  Like its good friend cANCER, it does not discriminate.  It affects all ages, races, genders, social economic levels, etc. 35% of cases is a male problem, 35% is a female problem, 20% are both, and 10% are unexplained.  That being said, you know a handful of people facing infertility right now, even if they aren't talking about it.  Let me do the talking for them so you can get a glimpse into what they are going through.

Infertility is.....overwhelming.  There are so many doctors appointments, often every other day.  There are so many bills, usually insurance doesn't pay.  There are so many decisions, ones you're sure you're not ready to make.  All of it is overwhelming.

Infertility is.....a life on hold.  You never know what procedures are around the corner next month, so maybe you can't take that trip.  You never know if you "might" be pregnant, so you aren't sure about that drink.  You never know what bills are on their way, so you don't want to spend your money. Always waiting creates a life on hold.

Infertility is.....exhausting.  Literally from all the meds.  Figuratively because you are on a meery-go-round that you want off of so badly, but you just can't get it to stop.  So many emotions is exhausting.

Infertility is.....constant pain.  With infertility, you are always sad.  Every single day.  Getting in your car and seeing the stroller on the sidewalk.  Turning on the tv and watching the diaper commercial.  Hopping on Facebook and reading all the baby updates.  Reminders are everywhere everyday.  We may hide it well, but we are always in constant pain.

HOWEVER....

Infertility does.....make you stronger.  Its pretty amazing to be able to look at something you were almost certain would break you and to see how far you've come.  It's pretty inspiring to be in a 4 year marriage that has weathered more challenges that most 50 year marriages and love that person even more than you did before.  I am stronger than I ever thought I would have to be, but grateful for the new found strength.

Infertility does.....force you to count your blessings.  A good day.  A smile for no reason.  Tulips blooming outside.  A glass of wine with girlfriends.  Weekday breakfasts before work with my husband.  A text or call reminding me I have someone on the other end who cares.  A "Best Teacher" note from a student.  So many blessings that I now see every single day that I used to take for granted...that alone is a blessing for sure.

Infertility does...NOT define you.  My infertility journey probably will be my life's defining story, but not because of the fact I can't conceive a baby on my own.  It defines me because of the person I have become through the process.  The person I have CHOSEN to become on this journey.  I am not where I want to be yet, but I am more of the person I want to be than before this journey.  It has made me better in ways that I never thought it could, and for that, I am grateful.



At the end of the day when I crawl

Friday, April 17, 2015

Stronger than cANCER


     cANCER has once again been on the forefront of our minds this week.  I've been reminded what a cruel disease it is and how much it robs from those who suffer in its presence.  It does not discriminate; it knows no age limits, no race limits, no gender limits.  Its power can be all consuming and for that reason we have to fight everyday to not give it the power it craves.  And no matter how much grace it gives, it takes with it a peace of mind that can never quite fully be given back.
     Last Friday morning at 5am I was pulling into the gym parking lot when Alan called me and said he was extremely dizzy and couldn't keep his balance.  I wasn't too worried and figured it was Vertigo since I have had some friends have it before and I was familiar with the symptoms.  Never the less, Alan was absolutely miserable and we needed to get him back to normal, so I headed home to pick him up and make our all too familiar trek to the ER.  After a quick exam, it was determined that it was most likely a typical case of Vertigo.  However, once you've had cANCER, it will forever be in the back of everyone's minds- yours and the doctors- is it back? So, just to be on the safe side, they ran a head CT. Thankfully, that came back normal.
     Coincidentally, Alan also had a full morning of 3 month cANCER appointments and tests already scheduled.  I wasn't originally planning on going with him, but since he still couldn't drive, I took him to his 8am round of appointments at the KU cANCER Center.  Man, if you think life has given you a bad day, go sit in that waiting room for 30 seconds and your priorities in life will be set straight real quickly.  Someone who lost a leg to cANCER.  Another who has been doing chemo for five years.  Almost all with multiple family members.  Support systems of family all baring their bald heads.  Little kids who should be out being stung by bees at the park, not needles in a hospital. There's just no way to put it.  IT'S. JUST. NOT. FAIR.
     Alan's 3 month bloodwork all came back good.  That was a relief. BUT...they found a mass on the chest x-ray that needed a follow up CT.  The oncologist was fairly certain that it was nothing to be worried about, but wanted to run tests just to be sure.  The good thing about all of these scans every three months is that you know every single little thing going on inside your body and have notes to compare even the most minimal change.  The bad thing is that you know every single little thing going on inside your body.  Seeing a common theme here?  cANCER has robbed that peace of mind and isn't giving it back.  So, we have sat on the edge of our seats once again this past week.  Luckily today, the CT scan showed the mass was just a calcium deposit.  We have good news and the"all clear" to carry us through another three months.
     Last Friday's events were proceeded by a phone call from my mom Monday morning.  One of my dad's oldest friends of fifty some years lost his fight to cancer.  He has a daughter my age that I've grown up with all my life.  A little over twelve years ago, she lost her mom to cANCER.  A couple of months back she had genetic testing done to find out that she has the gene for breast cANCER.  Now the question for her is When not If.  AGAIN.  IT'S. JUST. NOT FAIR.
     So, what do we do?  We fight like hell when we get that diagnosis.  When those we love get too tired to fight, we let them rest and we fight like hell for them.  We keep HOPE alive even when there is less peace of mind than there used to be.  We take control of our own lives, have the courage to get the knowledge we need, and then do what needs to be done to not give cANCER the power to it craves.  We become a voice encouraging others to make better choices, do the exams, get the proactive genetic testing.  We become living proof examples like my friend that no matter how much cANCER tries to beat us down and tear our families apart, that if we muster up all the courage we have, we can still live our lives with great meaning and purpose.   It isn't fair. It never will be.  But in the words of Stuart Scott, "We beat cANCER by how we live, why we live, and the manner in which we live."  For these reasons, we are, and always will be, stronger than cANCER.  

Triple Negative Breast Cancer, "I Won't Back Down!": Today, I ...

Sunday, April 5, 2015

Message of HOPE



     I have always loved Easter.  Whether its reflecting on fond memories from growing up and going to see my grandparents every Easter to feeling its always the first true day of spring, Easter has always been a special holiday.  It really wasn't though until these past couple years though and all of our struggles that I truly feel a NEED in my life for Easter and all the promises that come with it.  The message at church today was so incredibly perfect that I felt I just had to share it on my blog.

     We can't know great joy in our life until we know great pain.  And unfortunately, from time to time in our lives, we are going to have that sickening feeling that good and kindness and love and right have been defeated by evil.  That feeling that evil had the final word.  But Easter reminds us that light always triumphs over darkness.  We may pass through seasons of darkness in our lives, but it will never have the final word.  We can CHOOSE to be people of hope, no matter what our circumstances are.  We can CHOOSE to be people of Easter.
    Easter is not just about receiving hope, but its about giving hope. Easter comes with a mission...a mission for us to live it so that other people living in darkness can see its great light and receive that same hope too.

Happy Easter!
Jesus died on  Friday then rose on Sunday! Death could not keep Him in the ground. Praise God for sending His son Jesus to be our hope in this lost & dying world! .


 powerful.


Sunday, March 29, 2015

Lessons from a Bachelorette

     So those of you that know me know that I love reality T.V. and am also a sucker for a good love story.  So put two and two together and you have one heck of a Bachelor/Bachelorette fan.  Now normally I'm not a fan of people going on these shows and then using it to turn their five minutes of fame into 20.  However, I have thought all along that the most recent bachelor, Chris Soule's fiance, Whitney Bischoff is a class act ( I don't want to call her the "winner" because I believe in the fairy tale:))  I continue to think even more so after she has come forward publicly to share that she had some of her eggs frozen a couple of years ago (You can read/watch full story here: http://www.people.com/article/bachelor-whitney-bischoff-chris-soules-fiancee-froze-eggs)
     The media is always out to shed everything in a light that will attract the most attention.  I've seen articles stating how desperate she is to tricking Chris into having a baby, how she's using this to get her time in the spotlight while Chris is on DWTS, etc.  However, I think most, if not all of us that have traveled down the infertility road see this in a completely different light.  This woman who has seen first hand the devastation that infertility can cause to couples has taken the initiative to be proactive to protect her dream of becoming a mother someday.  Like she said, its sort of like an insurance policy.  Angelina Jolie just came forward encouraging those with family histories of genetic diseases, cancers, etc. to get tested and take proactive measures to ensure their health.  This is the exact same thing that Whitney Bischoff has done and is encouraging others to do as well.
     The bottom line is that a woman's maximum fertility is in her 20's and begins to decline in her 30's, particularly after the age of 35.  Women now-a-days are more career driven (which is a good thing!) and often waiting until later in life to have kids.  For whatever reason a woman doesn't have a baby in her 20's but does want to be a mom some day, shouldn't she be given a way to secure that for herself and her future family?  You also never know what curveballs life is going to throw at you (us Gore's know that all too well!) and having some of your eggs frozen is just another precaution if something were to happen healthwise.
     We ,know all too well that these procedures are expensive and not covered by insurance.  I know most people don't have a spare $7,000-$15,000 lying around to spend on freezing eggs.  However, if you are someone that does want to have a family one day and just aren't there right now in your stage of life, then it really may be something that you at least visit with a doctor about and get more information.  If it comes to needing them later down the road, that investment will be priceless.
     One of the main purposes of this blog is shedding light into the infertility world.  Knowledge is power and if my words empower at least one individual than it has served its purpose.  Thank you Whitney Bischoff for being a voice for infertility prevention.  Your knowledge will most certainly be power to at least one family out there and without ever knowing it, you will have changed their lives for the better.


 

Wednesday, March 25, 2015

Clomid...The Gateway Drug

Clomid, the gateway drug.  Next thing you know ... you're  poppin' Estrace  and shootin up  Progesterone.

Literally, Clomid is the gateway drug.  When one first goes to the doctor for infertility concerns, this is almost always the first medication they put you on.  Its an easy blue pill that can be bought at the local pharmacy and I think that it was only about $8 for a bottle.  Wow, do I wish that my drug taking experience ended there!  Next thing you know though, you are on to the harder stuff...shootin' up and all:)  The lovely meds that are involved with an IVF cycle can't be bought at your local pharmacy.  They usually have to come from a specialty pharmacy and are mailed to you and usually have a 3-digit price tag.  Some of them have to be kept refrigerated until taken, most come in the form of a needle that you inject yourself with multiple times a day, and almost all of them come with side effects.  I think when people think of IVF, they think of taking a couple  days of medication, then going to have a procedure.  At least that's what I thought.  However, I was WAY wrong.  I have been on hormonal medications now literally for almost two years straight.  The side effects of these meds is enough to drive you crazy in itself.  But, in the grand scheme of things, are absolutely something you can tolerate if it gives you a baby.  

For the most part, my side effects have been fairly mild from others that I have read about.  I didn't really have crazy emotional rages (although my hubby may say differently:)).  However, there have been plenty others.  Lupron which I've taken 4 cycles of for one month each gave me horrible hot flashes and night sweats the first three months.  I'm talking wanting to take your clothes off in public hot flashes.  Now I know that my mom was not kidding when she used to want to go roll around in the snow when she was having hers!  This last month of it, I've had horrific headaches.  Headaches that aren't made better by any kind of Advil or such.  I think my head has hurt for the last twenty days and I've just kind of gotten used to them.  Last go around, Lupron caused Aunt Flo not to come.  So, there was another med for that.  Unfortunately, that med gave me a bad round of Colitis which landed me in the ER followed by a lovely colonoscopy.  Most of the injection meds go in the abdomen.  They burn when they go in but the shot itself isn't painful at all.  Progesterone though has to go in the bum.  Alan had to give that one. And he HATES needles.  And he had to do it for 2 weeks straight.  That in itself was an experience!  I've never been allergic to any medication in my life, but it turned out I was allergic to that one.  About 2 weeks after taking the meds, I broke out with huge itchy welts.  Good news is I don't have to take that one again!  Then there are the lovely suppositories.  I'm not going to go into more detail on those other than the they are fact 3 suppositories a day. NOT FUN.  All of the meds cause significant weight gain.  Of course there are millions of other reasons why I've put weight on this past year, but I'm going to blame most of it on the meds:)

So, that's just a little glance at what kinds of meds I've been taking and all that they've done.  I honestly can't remember what it is like to feel "normal" since I've been on hormonal meds for so long.  Part of me does worry about the long term effects of all of these.  There really isn't a whole lot of research out there since women haven't been taking them all that long for there to be longitudinal studies, but a little common sense tells you that if a medication can make your body make 25 times the normal amount of eggs it is supposed to, it probably isn't that good for you.  That's the funny thing about infertility though.  You don't care about anything else.  You will endure any physical pain if the outcome is a baby.  When I went to the doctor for my allergic reaction, I asked her if I could keep taking it because I knew what an important med it was.  I told her I could withstand the itchy welts.  She looked at me like I was crazy and proceed to remind me that welts were the first sign of more severe reactions to come.  It was worth a shot though!  So, next time someone you know is on fertility meds, give them the benefit of the doubt.  They are literally at war with their own body, doing everything they can to feel normal when they feel anything and everything but that.

The 30 Best Someecards for Infertility + IVF

Tuesday, March 17, 2015

Million Dollar Babies

     So as you've already gathered from my last few entries, this blog covers all the touchy subjects...sex, money, religion, etc.  I'm usually not one to talk about controversial topics, but unfortunately those are at the heart of infertility.  We've covered the sex (or lack there when making a baby in our case) and have touched on the religion, so tonight we are going to talk about money.
     Finances should never be a decision one has to consider when trying to have a baby.  Sure, you a need to be able to support your family and take care of them, but when a couple wants to have a child and is ready to have one, money shouldn't be something standing in their way.  Unfortunately, for many of us struggling with infertility it is.  We're the lucky ones...we've been able to power through despite the financial hardships.  Unfortunately for too many, it stops at the diagnosis.  They simply can't financially afford the treatments.
    I'm not sure of the exact numbers, but I believe there are only 6-10 states nation wide that mandate coverage for infertility.  And of those, it isn't full coverage for most.  As luck would have it, Kansas isn't one of them.  So, this journey that we've been on and continue to journey on, has been an expensive one to say the least.  I am not writing this to gain sympathy, pity, etc.  I just want to bring awareness to the finance aspect of infertility that I was unaware of prior to being on this journey.
     I have a $2500 insurance deductible.  So what that means is that January 1 every year, I have to pay $2500 out of pocket for anything medical (visits, prescriptions, etc.) and everything after that is covered 100%.  Everything except for infertility.  And sadly, this is soooo common for most of us facing infertility.  I consider myself one of the lucky ones...my insurance does let the meds count towards my deductible and then will cover them after the deductible is met.  And that's a good thing cause let me give you an idea of how much those meds cost.  About $4000-$6000 for IVF meds...I've been through 3 of those.  The lovely Lupron shot that puts me into menopause...$900 a shot...I've had four of those.  Patches that I wear prior to and weeks after an embryo transfer...3 a day at $15 a patch.  So, we are just talking meds here.
    Procedures...artificial insemination or IUI...$500 each.  Our doctor does package deals for IVF which includes bloodwork, ultrasounds, and procedures...$15,000.  Any genetic testing, etc. is extra of course.  Frozen embryo transfers...$2,000.  Any additional bloodwork, procedures, doctor visits, etc., and there are a lot of them, minimum a couple hundred dollars.  They do not accept payment plans, by they do of course accept credit cards:)  Those are figures from our KU clinic.  As you begin to seek out experts in the field, they know it, and their price tag shows it too.  We just had a 30 minute phone consult with Dr. Schoolcraft in CO...$350 for the phone call and the possible start of a $40,000 journey if we end up having to go to CO.
     My frustration doesn't lie with the cost of the medical procedures...we all know that the medical field is an expensive industry.  It does lie though with the insurance companies.  Alan and I didn't do anything to bring our fertility conditions upon us.  We lead fairly healthy lives.  We don't smoke, don't drink too much (although this situation isn't helping the matter!), try to workout regularly, and eat somewhat ok.  There are so many other elective procedures that insurance will cover, but not this.  It makes my blood boil.
     So, it is my hope that this post will bring a little understanding on a couple key points.  My husband and I have great jobs, but unfortunately in the infertility world, it still isn't enough.  I tutor Monday-Friday until 7:00 most nights and then again on Sunday mornings.  My husband does side handyman jobs whenever he can.  This is why.  We know we want a family more than anything else and will do whatever it takes to make that happen.  We have talks at night as to where is the money going to come from.  We've considered depleting our retirement and selling our five bedroom house.  I'd work until I'm 70 and live in a house that is way to small for our family versus a large empty house any day if it means I will get to be a mom.  The GoFundMe was literally a gift from you all that I can never thank you enough for...you've helped to lighten this load just a little bit and it means the world to me.  Finally, if our path leads us to adoption, we would consider ourselves equally blessed.  However, adoption runs an additional $30,000 or so on top of all already spent on infertility treatment.  Unfortunately, there is no easy answer in the world of infertility or money for that matter.  It is my hope that everyone reading this and going through infertility has had friends and family as understanding on this topic as mine have been.





Sunday, March 8, 2015

One Step at a Time...

     Tonight's blog is the last part of the crash course of Gore Family History over the last two years.  I really felt that I needed to put everything about the last two years in writing for one to really understand our story, but at the same time, I'm eager to get this part of the story telling over with.  There are so many other things that I am looking forward to writing about, and frankly, rehashing the last year of failures isn't necessarily one of them.  But, to understand this story fully, you've got to have the background...so we will continue on:)
     We came back from Indiana mid-August and by September we were ready for another IVF.  The protocol for this was was different...I would be receiving a much higher dosage of meds in hopes that I would make a whole lot more eggs (can you say chicken again?!).  After the eggs were fertilized and grown to five days they would be frozen for two months before being transferred back to me, so the doctor wanted to have a good amount of embryos to guarantee that they withheld the freeze/thaw process.  That egg retrieval went very well and when all was said and done we had 5 embryos that were frozen in September.  I was then put back on the "menopause" drug for two months.
     When all was said and done with the holidays and all, two of the five embryos were transferred back to me at the end of January 2015.  February 8, 2015 we got word that those two embryos didn't make it.  Hence, when this blog was started.  So now, you are fully caught up to speed.
     Where we are now...we have met with our KU team.  We still have three embryos left...all which they still feel are of great quality and stand a great chance of being successful.  So, I'm back on the "menopause" drug AGAIN, for another month, and then we will gear up for another frozen egg transfer in May.
     In the meantime, we do have a phone consult next week with Dr. Schoolcraft, a fertility specialist in Colorado (BONUS: He was Bill and Giuliana Rancic's doc!)  If there was anything that Alan's cANCER experience taught us is that it does make a huge difference in where you receive medical care.  Although I love my KU team, their statistics are a 60% chance of pregnancy with normal miscarriage rates and Colorado is 85% of a live birth.  HUGE difference.  We still fully plan on using all of the embryos with KU first, but at least we will have another doctor on backup if we need to take that next step after.
     Overall, right now I'm doing pretty good.  I don't know if its because I am treating it more like an "action plan" of what needs to be done next in a job like mentality or because I'm in a "waiting month."  Months where I get my "menopause shot" or I have to take the birth control to reset my cycle bring a sense of normalcy in a way.  Biologically there is nothing I can do that month to have a baby, so in a sense, that stress is gone.  They are also the hope filled months as you are beginning to make the climb up the roller coaster again just wondering what's in store.
     I do reflect back on the last few years and I am in awe of who I've become.  I'm not one to brag on myself about anything, but I'm gonna do some bragging here for a moment.  Up until this experience, I was given the most perfect life.  Amazing family, privileged upbringing, incredible husband, great job, BLESSED life.  Everything came relatively easy.  I didn't know what struggle was.  I also have spent my whole life believing that I was put on this earth to be a mom.  I was obsessed with babies and kids for as long as I can remember.  At 5 years old I was setting my alarm clock to give my dolls midnight feedings.  I was babysitting by 5th grade and continued to do so- 20 hours a week until I graduated high school- not because I had to, because I wanted to.  I then went on to become an elementary teacher.  Being a mom is the one thing I want more than ANYTHING in this world.  And then having to face mortality with my husband at such young age.  Having to sit in room with the love of your life at age 31 and hear, "I'm sorry but its cANCER..."  Heartache after heartache after heartache.  Through all of this though, I will say though, that I am so proud of how strong we have become as individuals and as a couple.  This all could have torn us apart but its brought us closer together.  It could have beaten us down, and it does at times, but we still get back up.  We are still able to get out of bed each day, as hard as it may be at times, and find the good in everyday.  We can still smile, laugh, and know there is so much good in life.  My hairdresser, Andrea, summed it up in the most perfect words, "I don't wish what I have gone through on anyone, but who I have become in the process on everyone."  And that's exactly it.  I don't wish anyone I've known to know the pain we've known, but I do feel incredibly blessed to have become the person I am as a result of it.







For those of you that have been asking, here's the link to our Baby Fund Page.  From the bottom of our hearts, with the deepest love and gratitude, THANK YOU:)

http://www.gofundme.com/makklo?fb_action_ids=10152741717431297&fb_action_types=og.shares&fb_ref=fb_g_my_t

Saturday, February 28, 2015

cANCER

     I've "borrowed" the title for this post from an amazing woman in our community.  She and her young son have both battled cancer and young son continues to put up an AMAZING fight.  Whenever she posts about this awful disease, she never gives it the power it wants.  I want to honor their fighting spirit as I talk about how this awful disease rocked our world.
     On the morning of July 9, Alan went to his primary care doctor for what was supposed to be some routine medical care.  That day ended with both of us sitting in the office of the urologist hearing the words that no one wants to hear, "You have Testicular cANCER."  He was then scheduled to have surgery 6 days later to have the mass removed.  We had drove separately to the appointment- neither one of us had started our work day thinking that it would end this way.  I remember leaving the doctor's office, sitting in the parking lot to call my Mom and then my friend, Alaina.  Both of them were in utter shock, just as I was.  How was this happening?  Why were we being given another battle when we weren't well into the 1st quarter of the other one we were fighting?  Surgery on the 16th came and went.  Alan did great and all went quite well.  However, the results of the type of cancer came back and they weren't what we were hoping for.  The cANCER was more rare and aggressive than originally thought.  Masses had also been found on the lymph nodes above the cancer area.  Additional treatment (radiation or chemo) or surgery would be required.  We happened to have a follow up with the fertility doctor two days after Alan's surgery.  He was such a good sport.  I dragged him with me to that appointment less than 48 hours after being under the knife and worked on in the most uncomfortable of places.  At this point we still didn't know the next course of treatment.  With chemo still on the table, our RE highly encouraged us to freeze some swimmers.  So, I think every other morning for the next two weeks or so, I would wake Alan up early and make him "make a deposit" on his way to work.  Again, SUCH a good sport.  Alan met with a team of oncologists here at KU and then through the connection of a great family friend got hooked up with  a specialist in Chicago and then a surgeon Indianapolis.  The Indianapolis Team was one Alan decided to go with,  (Huge selling point that they were the ones to save Lance Armstrong's life as well!)  So, the first week back at school for teachers, we were off to Indiana for Alan's surgery.  They would remove the lymph nodes in a surgery similar to open heart resulting in a 14 inch incision down his stomach.  He now has a lovely centipede scar from all 53 staples that the women at Lifetime love to see at the pool:) Amazingly, the surgery only lasted a little under two hours.  The same surgery at KU was slated for 10-12 hours.  That was Alan's and my first experience first hand on the importance of seeking out medical professionals who excel in their field.  And better yet, the masses were not cANCER and Alan was cANCER free.  BEST.NEWS.EVER.  Four days later, we were back on a plane heading back to Kansas City.
     Alan jokes though, and its true, that cANCER was the easy part of his journey.  Recovery was the hardest.  Alan ended up back in the hospital on two separate occasions.  Both had to do with fluid collecting at the surgery site.  The first time was only a few weeks after we returned from Indiana.  He had extreme lower back pain so I took him to the ER one night.  They found fluid had collected at the removal site.  They were able to remove some of it through a procedure but not all of it.  His three month CT scan in October showed that it had collected again, so I a permanent drain was put in this time for as long as needed.
     The morning of November 1, I woke up to run some errands.  Alan was feeling pretty miserable and had a fever.  I didn't think anything of it at first though and went about my morning.  However, when I was out and about, common sense finally kicked in.  My husband has a plastic tube coming out of him and now he has a fever. Infection.  I raced home and took him to the ER.  Sure enough,  he had a severe infection throughout his body.  At this point they didn't know what it was.  The next 24 hours that followed were the scariest of my life.  Scarier than infertility diagnoses, scarier than surgeries, scarier than cANCER.  He literally cried and moaned for 24 hours straight.  Other than that, pretty much incoherent.  When the infectious disease doctor came in to talk with me Sunday morning, they said it's a good thing you brought him in when you did or we would be having a very different conversation.  However, at that point though, they were still very concerned.  There were so many unknowns- and their biggest concern at the time was that the infection had spread to the brain.  I made a phone call to my parents in Chicago, and thankfully, by 5:00 that evening, they were by my side.  We finally got a diagnosis of a strep and staph infection in the blood.  After a week in the hospital and celebrating our 4th (yet most likely most memorable) anniversary in the hospital, we were going  home again.
     It was hands down one of the hardest things I have ever had to do seeing my husband so sick.  He's always been the stronger one of the two of us.  Yet, there were nights when we would lie on the couch and both sob wondering if life would ever be "normal" again.  It was during this time that the weight of the last year and a half really fell on my shoulders.  Most days while driving pretty much anywhere, I would just sob in the car.  I didn't know how much more I could take.  I was broken.  But, slowly, things did begin to turn around for Alan's health.  He did get better and,  by the end of 2014, things had returned to "normal" again.
     I remember one morning waking up and thinking to myself that this cANCER thing was really over.  It was a blessing and a curse at the same time.  In the most obvious ways, a blessing.  My husband was finally on the track to being healthy again.  We most certainly were not the same people we were before the experience.  Life had more meaning.  Family and friends had more meaning.  Love had more meaning. But now, this awful thing that had been a dis-tractor for the past 5 months, something so much more urgent, permanent, and life threatening than infertility was gone.  And so my mind became consumed...24 hours a day... with babies once again.

And the Mountains are Steeper...

     Sorry for the delay between this and my last post.  Time seemed to slip away from me this last week...always so much to do and so little time to do it in!  Anyways, I'll continue with the last post, giving you all the background to our story.
     So I left off in the summer of 2013 just have having had surgery to "treat" not "cure" my endometriosis.  I was then put on birth control for a few months.  At this point, I remember having a number of thoughts.  Part of me was relieved that Alan and I were dealing with both male and female infertility.  I think that helped lessen the guilt for both of us, knowing that neither one of us alone was the cause of all of this.  Another thought that I remember having was that although I had just had surgery and was now working with a fertility specialist, I remember thinking that our fertility issues really weren't that bad.  That we would be well on our way to our family in the next few months or so and would never even have to imagine thinking about IVF, egg/sperm/embryo donors, etc.  I laugh at my naiveness now.  So, intra-uterine insemination (IUI), artificial insemination, or "turkey baster" procedure (what my friends like to call it) was scheduled for the beginning of August.  This is the procedure where they basically give the swimmers a running start, but once inside the pool, left to do things on their own:)  I started taking Clomid, a drug that cause a woman to ovulate a couple of eggs at a time as opposed to usually just one, at the beginning of my cycle.  I went in for blood and ultrasounds every couple of days just to see how things were progressing.  Once the doc was happy with the size of the eggs (I think I had three that first time), I gave myself a trigger shot 36 hours out.  Well, I didn't give it to myself.  That first shot I remember making such a big deal about.  I walked over to my neighbor's house, (He used to be a nurse), and he gave it to me.  It was a simple shot in the lower abdomen.  Not a big deal, but still scary at first to be giving yourself a shot at home.  Again in hindsight, now, I'm an old pro at giving myself shots.  Anyways, the morning of the procedure Alan went and did his thing, they cleaned and weeded out the strongest ones, and a couple hours later, the little swimmers were put back in me.  Alan and I were certain that it was going to work.  After the procedure I had him take me to Barnes and Noble and I bought a copy of What to Expect When You're Expecting.  The next day, I went out and bought all the things I needed to tell him "we were pregnant" in a cute way.  I was ready!  Well two weeks later, via peeing on a stick, we were not pregnant.
     Ok we thought, no biggie. We did another "turkey baster" procedure that November (You'd be amazed the amount of time it takes in between procedures).  Another negative.  After two failed IUIs, we met with our doc and decided to take the leap and do IVF.  It was soooo much more expensive than IUIs, but certainly this would result in a baby.
     So, in the beginning of February of 2014, we started our first round of IVF (In-virto Fertilization).  For those of you unfamiliar with this procedure, this is when I get to shoot myself up multiple times daily for multiple days in order to make as many eggs as I can.  Can you say feeling like a chicken?!  Then, the eggs are removed, hand fertilized with the little swimmers by an embryologist, grown in a lab for 5 days and then put back inside me.  I remember hearing about this when I was a little kid that babies were actually grown in "test tubes."  Little did I know that one of my own would be!  After a couple weeks of lots of medications, lot of blood work and almost daily doctor appointments, we were ready for the egg retrieval.  I don't remember how many eggs were retrieved that first time.  I do know that after they were retrieved and grown in the lab for 5 days, we had two really great ones but none left over to freeze.  Those two were transferred back into me on day 5.  Two weeks later though, via a blood test this time, another big fat negative.
    We met with the doctor shortly after that to come up with....I guess Plan E at this time.  We were beginning to suspect that my endometriosis was coming back, both from symptoms I was starting to have and some fluid found at the time of retrieval, so my doctor wanted to put me on Lupron for a month, do an egg retrieval, freeze the embryos, put me back on Lupron for two months, and then transfer the embryos back.  Lupron is this awful drug that is given in a one month injection and essentially tricks your body into thinking it is in menopause.  I'm talking night sweats, hot flashes, and all.  NOT FUN.  So, I did that lovely drug for a month.  I then began shooting myself up again to make a bunch of good ol' eggs.  However, this time, instead of making a lot of eggs for the retrieval, my body just made a couple of eggs really fast.  Once they get to a certain size, the eggs have to come out or they can cause a threat to your health.  So, we had to turn this round into another IUI.  The good thing that came from this was that at the last minute I decided to seek out an acupuncturist.  It was something I was considering, but hadn't done.  Seeing her has been one of the best decisions I have made to date.  I'll post later on that.  So, I went in for a couple acupuncture treatments, and we turned this cycle into an IUI.  Another negative.
     So, at this point, its about the middle of June 2014.  As I said before, it takes a long time between procedures.  After every failed cycle, you have to go back on birth control for a month for your system to reset.  I was on the pill for the month of July.
    As if the ride hadn't been bumpy enough, it was about to get real interesting.  July 9, 2014, Alan was diagnosed with Testicular Cancer.


Tuesday, February 17, 2015

The Valleys Are Deeper...

     Warning: This post is a brief summary of the journey we have been on for the last few years.  I do want to say though, about this post and all other ones to come, I have chosen to write this blog to share my journey with others, so that they can gain encouragement and strength from my words, and understand what their family and friends are going through when they share with you that they are dealing with infertility.  I am not writing this to complain or gain pity, but rather be a voice of support, understanding, and education for those dealing with a disease that is so very often not talked about.

     Alan and I were married on November 6, 2010.  It was at dinner on our first anniversary that we decided that we would officially start trying for a baby, or "pull the goalie" as Alan likes to phrase it.  I don't know why, but even at that point, I had an inkling that this would be a journey for us.  Fast forward to August of 2011.  I had my annual exam and visited with my OBGYN about the fact that we had been trying to have a baby for almost a year at no avail.  I had described my symptoms that came along with that time of the month, but she didn't really seem that concerned.  However, she did suggest that Alan go ahead and get tested as it was much easier to diagnose male infertility than female.  I pretty much sent Alan off to do his thing at the lab the next day.  Those results came back and showed that Alan's counts were "low and slow."  After a visit to the urologist in mid-October, everything checked out fine other than the fact that his counts were well below average.  Alan was only a couple weeks away from his first Ironman, so I was convinced (or wanted to be convinced) that all of this could be chalked up to riding a bike too much and wearing too tight of shorts.  Low and behold, the next day he had a dresser full of boxers, not boxer briefs.  The urologist went ahead and referred us to a reproductive endocrinologist (RE) that we would meet with in December.  Ironman Florida came and went with great success, but no baby.  After 6 weeks of waiting for an appointment with the RE, we got a phone call a couple days before our appointment that the doctor had gone on medical leave and they didn't know when he would be back.  And so began the beginning of so many long waits.
     We had friends over for dinner some time shortly after that and they mentioned to us that they were working with the KU RE team.  We went ahead and made our appointment at KU- another six week wait.  Come the morning of the appointment, sometime in February 2013, I wake up at 4am to a text of a snow day.  Now normally, snow days are heaven sent.  But not this one.  A huge blizzard was about to hit KC.  I was still convinced that doctor's offices don't close for blizzards and Alan would be able to drive the 100 blocks south in the downpour snow to get me to this appointment.  But no, around 7:30 I got a phone call that they clinic would be closed for the day and all appointments would be rescheduled.  Another two week wait.  So, the week before spring break 2013, we finally had our first meeting with our RE, Dr. Krieg at the KU Center for Reproductive Medicine.  In the past 7 months that had past since I last talked with my OBGYN, I got really close with Dr. Google.  I was convinced that I had endometriosis.  After visiting with Dr. Krieg, she seemed to agree with me.  So, surgery was scheduled another 6 weeks out for the end of April 2013.  At that time, I had laparoscopy and hysteroscopy where they diagnosed me with stage 4 endometriosis found all over my reproductive and digestive tract.  Fifteen years of many questions of stomach cramping, heavy periods/pains, and digestive issues were answered with this diagnosis.  After my surgery and for about the next year, I had never felt better physically.  All the awful symptoms of being a girl were pretty much relieved.  I was then put on birth control for the next three months to help suppress the rest of the endo that they couldn't get to.
     I will go ahead and stop there for the night.  If you can gather anything from this infertility journey, I'm sure you've picked up on the fact that there is A LOT of waiting.  And more waiting.  Here we are almost a year into our story and nothing has even happened yet!  We still have artificial inseminations, IVF, and cancer to get through in the coming blogs:)

     For those of you who have known me for a long time know that I am a sucker for quotes.  Pinterest has been a Godsend for this reason!  I have a huge "Quotes" board on Pinterest.  These keep me positive when the days are not.  I've decided that I will end each blog sharing my favorites with you:)

My struggles have made me what I am today:)

Saturday, February 14, 2015

God's Hands and Feet

     Many of you know that my husband is the blogger in our family, but given the recent events in our life, I've decided to take a spin at it too.  It's something that I've thought about doing over the last year but have never forced myself to sit down and put thoughts to paper until now.  Most of you know that the last 24 months, more specifically, the last 7 months, have been less than stellar.  We have been dealing with infertility formally for two and half years, trying to have a baby for three and a half, and then we'll throw some testicular cancer in there just to shake things up a bit.  That's a very quick background on our lives for the last couple of years, more to come on my specific infertility journey later.
     Back to why I feel now is the time to start this blog.  As many of you are aware, we got news Monday that our 2nd attempt at IVF failed.  Alan and I stood in our kitchen Monday night, holding each other, crying, both barely able to breathe we were so overcome with such sadness, loss, and grief.  I'm not gonna lie, we were both very angry and confused with the man upstairs.  Alan has always been the one with unshakable faith, the one who blindly believes against any and all scientific reason or proof.  It has been because of his guidance that I have become the strong Christian that I am today.  However, Monday night he was mad and confused.  He stated that if he was to be able to keep believing he needed to see some BIG sign, some miracle this week from God.  I thought to myself, there's no way.  Things like that just don't happen on demand.  What was I going to do if the man I admired most, the man whose faith is the sole reason that we are both still standing after the last 7 months of trials, stopped believing?
     Fast forward to Thursday.  I'm was at work and since we had parent teacher conferences this week, I had some open time in my schedule.  I was sitting at my desk when my dear friend and co-worker, Mona came in.  She proceeded to tell me that her and one of my other best friends, Alaina,  had set up an online fund raiser for Alan and I.  For those of you that don't know, infertility treatments are very rarely covered by insurance.  Although the physical pain is there, the emotional pain is harder.  And then put immense financial burdens on top of that.  I was speechless. Within an hour, we already had a couple thousand dollars in donations.  Friends from college. Friends parents from high school.  Friends from elementary school. Old coworkers.  Current coworkers.  People we hadn't even met.  Right then and there we got out sign.  God hadn't forgotten us and he sent you all to be his hands and feet reaching out to us, supporting us, letting us know that this dream of becoming a family could and would be still very much a reality.
     And so that is what the purpose of this blog is.  Whether you want to consider it a blessing or a curse, I have never been a shy one.  Alan and I are both pretty much open books.  I feel that it is now my job to be a voice of support and education for anyone out there struggling with infertility.  Infertility is considered a silent disease.  On the outside we look like everything is fine, but on the inside we are broken.  It takes almost everything we have, every single day, to not let our sadness consume us.  But we do it because we know there is still so much goodness out there in the world and we aren't going to let it pass us by waiting for our other dream become a reality.  You all are that goodness.
     THANK YOU for the bottom of our hearts for the incredible love and support you have shown us this week.  Although you have given monetarily, you have given us back the greatest gift of all, HOPE, just when we needed it the most.  I hope you will continue to walk along with us on this journey.  And if you or anyone you know out there is struggling with infertility, let them know that they are not alone.  Whether its you or your mother's cousin's friend's next door neighbor, may they get strength from this blog and know I'm only a phone call away.  Let us all be God's hands and feet in the ways that we know how to best.


For those of you that have been asking, here's the link to our Baby Fund Page.  From the bottom of our hearts, with the deepest love and gratitude, THANK YOU:)

http://www.gofundme.com/makklo?fb_action_ids=10152741717431297&fb_action_types=og.shares&fb_ref=fb_g_my_t